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Thread: Experts find potential cause of Crohn's

  1. #21
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    Quote Originally Posted by WillBrink View Post
    There's a lot info to absorb so I'd take a long slow look at it at some point. A promising therapy is also fecal transplants which is just as it sounds, but shows real promise and does no harm as far as I'm aware. The OP of this thread makes sense as to why it may be beneficial. It's very effective for c diff infections, but may also help with Crohns:

    http://www.wcvb.com/bethisrael/fecal...hrons/32398976

    http://www.webmd.com/ibd-crohns-dise...crohns-disease
    Fecal translplant, not unlike probiotics and attention to the microbiome, might have benefit for granulomatous bowel disease patients (Crohn's Disease and Ulcerative Colitis) but the are no convincing peer-reviewed studies the bring any level 1 evidence to support a given therapy. Many of the studies do indicate promise and that there is a lot we don't know about the subject. I'd say it's on the threshold of moving out of the realm of homeopathic therapy but these things dont' have near enough science behind them to be anything like standards of care.

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    Quote Originally Posted by p7fl View Post
    Like journalists who get assigned gun articles, I am not certain this information is correct.
    I don't know of any Crohn's treated by surgery. I could be wrong.
    My son has been fighting Crohn's for 18 years. He is having his second surgery tomorrow, after losing 20 pounds he did not have to lose over the last two weeks. He has been in the local hospital for 3 days with an NG tube inserted. Today his surgeon, wisely I think, had him transferred him to another hospital so a colorectal specialist can do the surgery.

    The problem with resecting portions of the bowel in a Crohn's patient is that the inflammation generally comes back where the sections are rejoined.

  3. #23
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    Quote Originally Posted by Hmac View Post
    Fecal translplant, not unlike probiotics and attention to the microbiome, might have benefit for granulomatous bowel disease patients (Crohn's Disease and Ulcerative Colitis) but the are no convincing peer-reviewed studies the bring any level 1 evidence to support a given therapy. Many of the studies do indicate promise and that there is a lot we don't know about the subject. I'd say it's on the threshold of moving out of the realm of homeopathic therapy but these things dont' have near enough science behind them to be anything like standards of care.
    Yes, it's the realm of promising therapy that needs further research to be sure.
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  4. #24
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    Quote Originally Posted by p7fl View Post
    Like journalists who get assigned gun articles, I am not certain this information is correct.
    I don't know of any Crohn's treated by surgery. I could be wrong.
    My sisters BF has had quite a few surgeries, but they have not helped very much.

  5. #25
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    The complications of Crohn's disease...stricture, perforation, fistula, are a separate level of misery from the actual disease itself. Surgery can be very helpful in managing those things, sometimes is absolutely necessary, and will usually make the patient feel better. It does nothing for the disease itself however.
    Last edited by Hmac; 09-29-16 at 12:06.

  6. #26
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    Quote Originally Posted by Hmac View Post
    The complications of Crohn's disease...stricture, perforation, fistula, are a separate level of misery from the actual disease itself. Surgery can be very helpful in managing those things, sometimes is absolutely necessary, and will usually make the patient feel better. It does nothing for the disease itself however.
    If that is in response to my post, trust me, I know that. Over the years my son has become pretty adept at monitoring himself and working with the gastroenterologist who was treating him. Then that guy retired. Quick succession of two gastroenterologist through the clinic, quite frankly, I don't think either one of them was making the clinic enough money.

    My son has been having problems for a couple months, he has never seen the current GI guy, just his PA.

    Finally, last weekend, my daughter-in-law had enough and made him go to the ER on Sunday. And here we are.
    Last edited by 26 Inf; 09-29-16 at 14:21.

  7. #27
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    Quote Originally Posted by 26 Inf View Post
    If that is in response to my post, trust me, I know that. Over the years my son has become pretty adept at monitoring himself and working with the gastroenterologist who was treating him. Then that guy retired. Quick succession of two gastroenterologist through the clinic, quite frankly, I don't think either one of them was making the clinic enough money.

    My son has been having problems for a couple months, he has never seen the current GI guy, just his PA.

    Finally, last weekend, my daughter-in-law had enough and made him go to the ER on Sunday. And here we are.
    It wasn't, but I"m surely sympathetic to your son's situation, and yours because of the pain that you and your wife have gone through over this terrible disease. I wish him the very best. It's a wise move to have him attended by someone with experience with the surgery, especially done laparoscopically. It's also smart to have him somewhere where a gastroenterologist knowledgeable of Crohn's disease can consult.

  8. #28
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    humira for my wife ...
    she hates it.

    surgery next montg October 5th.

    pray for her and me.

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  9. #29
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    Can't believe I haven't found this thread before now. Last spring I was diagnosed with having Crohns, I started experiencing symptoms back in 2015, discomfort, lost of gas, sudden urge to have to go often and then only a little bit coming out each time, and some other rather unpleasant and embarrassing symptoms, made going to the gym unpleasant. Here is the weird part, that summer the wife and I went to Kauai for our honeymoon, the symptoms disappeared instantly and only returned once we returned to Pasadena. I ditched our drip coffee pot and went with a french press and the symptoms eased quite a bit but were still there. The symptoms completely disappeared when we went to Maui last year, when I went to Utah for SLC last year as well, the symptoms have eased even more since we have moved to Duarte. One thing I noticed is that there seems to be a lot less minerals and who knows what in the water here than in Pasadena. The water there was really bad, mineral deposits that grew fast and thick.

    The Dr. gave me a colonoscopy and said everything looked pretty decent but there was obvious irritation to the bowel, got me taking Mercaptopurine and Budesonide. The downside of the medicine is that the Mercaptopurine dampens my immune system and my body's ability to heal, takes longer for cuts and other injuries to heal than before.

  10. #30
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    My wife had no symptoms when we were in Paris. She's moved to a clean diet and it has helped immensely. Any time she eats at a chain restaurant she gets bad symptoms, and we believe preservatives are a major irratant for her.

    That said, it seems everyone reacts to different foods differently.

    Interesting about the water. I'd be curious to compare the chemical profile, pH and ORP of each. Hmm.
    Last edited by MegademiC; 05-23-17 at 11:24.

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